Dealing with Sensory Overload

By: Megan Fickert, Therapy Aide

What is Sensory Overload?

Simply put, sensory overload is when one’s senses become overwhelmed to the point that a person is negatively impacted. Sensory overload can affect anyone but is particularly common among those with developmental disabilities like ADHD or autism that cause difficulty with filtering external input that other people might find perfectly tolerable.

Sensory overload can be a physically painful experience. As a small child, if I was outside and someone a block away was mowing their lawn, I would crouch low to the ground and clasp my hands over my ears. I used to run out of the bathroom in elementary school because of the automatic toilets, and to this day, I still have to cover my ears whenever I flush!

To an observer, it will often be obvious what is happening to a person experiencing sensory overload, but other times people may simply appear distracted or disengaged from their surroundings or may lash out in frustration instead.

For many disabled people, sensory overload becomes an everyday challenge. Let’s go over some ways of dealing with it.

Prevention

The ideal scenario is preventing instances of overload from happening in the first place. This means being mindful of your surroundings and planning ahead. Know how certain stimuli affect you or others. Have an escape route in mind and a way to communicate your needs. Avoid situations you know will lead to sensory overload if you can.

But of course, life doesn’t work seamlessly and there will always be unexpected scenarios that bring on overload. Here is how you can help yourself or someone else when it arises.

1. Remove Yourself

If possible, one of the quickest ways to handle overload is to remove oneself entirely. If you begin to feel overwhelmed, excuse yourself or ask someone to help you get out of the area. If you are assisting someone else, keep an eye on their reactions and give them chances to escape their environment if it seems like they have become overloaded.

Some adults and children may not have the self-awareness or communication skills to let others know they have become overloaded, so check in with them often when you are in especially stimulating or busy environments, and remember to take breaks even if sensory overload hasn’t occurred yet.

2. Block Incoming Senses

If leaving is not an option, the next best thing is to block stimuli. Wear earplugs or headphones if sound is an issue. Cover your eyes, look to the floor or even hide under a blanket to block visual input. Plug your nose to keep smells away. Have alternative clothes in case you become irritated by tags, seams or textures.

3. Ask for Help

In some cases it may be possible to ask for help. Admittedly this can be a scary task and isn’t always feasible, but some venues may be able to accommodate your needs if you speak up! Ask for the volume to be lowered or lights to be turned down, ask to be seated away from others. This is often best done as part of prevention, but sometimes it’s necessary to ask for help on the spot, too.

4. Override External Input

When it comes to sensory overload, sometimes the most overwhelming part is experiencing excess stimuli that we have no control over. To counter this, it might help to create your own stimuli to focus on instead. (Be mindful that in public scenarios, this might not be possible if it will be disruptive for others). 

Stimming, or self-stimulatory behavior, is often a natural reaction to sensory overload. If external sound is bothersome, listen to music or make sounds of your own to focus on instead! Draw a picture or focus on a specific object to drown out other visual input. Flap your hands, wiggle your toes, or stomp your feet to express control over how your body feels. Use a weighted blanket to control proprioceptive input.

Basic Sensory Overload Kit

Here is a list of some good items to keep on hand for situations when sensory overload may be expected. Because different things work for different people, make sure to customize your own kit with what works for you based on the situation and circumstances.

• Ear protection (headphones, earplugs)
• Eye protection (sunglasses, hats, eye masks)
• Hand fidgets (tangles, stress balls, marble mazes, etc.)
• Chewable fidgets (handheld or wearable “chewelry”)
• Weight/pressure tools (blankets, vests, compression garments)

Sensory Overload Summary

Ultimately, how one deals with sensory overload will greatly depend on the individual and the situation, but these are the basics on how to help yourself or others when faced with it in daily life.

Remember that instances of overload are inevitable, but being proactive and utilizing tools at your disposal can minimize these unpleasant experiences for yourself or someone you care about.

To learn more about sensory processing disorder and how we can help, visit: https://www.easterseals.com/dfv/our-programs/sensory-processing-disorder.html

Indoor Activities to Release Energy and Build Imagination

By: Occupational Therapist, Laura Van Zandt, MS, OTR/L,

Container Play Activity

By using simple materials and exploring your child’s natural interests, you can ‘sneak’ in some various fine motor or speech and language development for toddlers. Remember, get down on the floor and see where they take you in play – play is the work of the child, but it shouldn’t be hard. 

Work together to put some of your child’s favorite small toys in different containers. Containers can be found all over your house or after meals. Use a (cleaned) yogurt cup, oatmeal container, cereal or pasta box, delivery package, etc. 

Watch this video for the overview, or scroll down below for more information.

For my three-year-old, I had him pick out the toys, but you can do this ahead of time to keep it more of a surprise. You can easily incorporate different developmental skills into this simple task but remember to keep it fun and easy for you both. If it is too hard (or easy), here are some other ways to update:

• Decrease or add language skills by sorting toys into different sizes or colors of containers
• Use simple words that match the action and the emotional experience paired with affect in your voice to keep your child present and engaged (e.g., hard – stuck – pull –wow – etc.)
• Explore pretend play (the options are limitless) – go to a store, have a party, have a snack, greet guests in different ‘houses,’ put bad guys into time out or jail, and more!
• Work on fine motor skills by opening different containers or using different household materials to practice wrapping them) adjust the type of container based on your child’s abilities and base how you decorate on your child’s age.
  • If your child is between 15-20 months, you may only want to have them work on removing the tape and having the lids pre-opened, so they only have to focus on pinching and pulling. You can add simple things like markers or stickers to decorate if you desire.
  • If your child is closer to 24 months, you can sneak in scissors (supervised) to snip the tape before you wrap up the container. You can also include markers and stickers but add large shapes to scribble so you can color.
  • If your child is closer to 36 months, you can do all the same things above, but you can add more of a challenge by drawing lines or circles together to decorate.

Simple Sensory Play Ideas: Dump Truck Game

Ask any specialist working with kids, and they will tell you play is the work of the child. It’s through play that a child’s life becomes alive and enriched with endless life lessons. It is through play that boundless learning opportunities unfold.

The good thing about play is it doesn’t have to be complicated or even expensive. Play should be about you connecting with your child and following their lead. A toddler’s mind is like an unread book full of adventures just waiting to be experienced if we just let it unfold. The most essential component of play is being one with your child. If you allow them to express their interest, unlimited possibilities will present themselves.

In this video, I use my son’s interests in construction vehicles to provide him with some sensory input. When the seasons start to change, and winter is upon us, most parents find themselves all going a little stir crazy being stuck inside. Kids need movement just as adults need movement. However, kids especially need an outlet for all the fun imagination developing inside their little bodies.

Materials needed for this activity:

1. You
2. Your child
3. Lots of pillows or you can use your bed for a soft landing cushion

Let your child lead you, however, here are some ideas to expand this play.

1. Count to a specific number or use a particular word that your toddler needs to listen to before he can be dumped
2. Have your child take an object with them to hide under the pillows / within the bedsheets to bring to the junkyard if pretending to be a dump truck
3. Hide people/animals under the pillows / within the bedsheets to be a rescue hero flying and going to save the people/animals -> can expand the steps of play to bringing the people/animals to their homes once safely found
4. Depending on where your child is at with his or her unique development, use less language and highlight only the key words paired with the actions (up, go)
5. Wait for your child to do something to tell you he or she wants to play (e.g., comes back to you, lifts arms up, leans closer to the pillow to fall, etc.)
6. The benefits of sensory play are endless and certainly can be enjoyed by all ages!

Make it Fun!

Remember, this is your time with your child. This activity can be as long or as short as you need it to be based on your available time. There are many ways to expand to work on speech sounds, language skills, movement, and fine motor. Sit back and
enjoy the process while the play unfolds. Have fun!

Ending Notes

For more play activities for all ages, search our blog at eastersealsdfvr.wordpress.com. If you are curious about how your child is doing or have concerns about his/or her development, we have a free screening available at askeasterseals.org. This tool looks at
key developmental areas: communication, gross motor, fine motor, problem-solving, and personal-social skills. Based on your responses, the results will help you see if your child’s progress is on track and alert you to any potential concerns.

If delays are identified, Easterseals DuPage & Fox Valley can offer the support needed to be school-ready and build a foundation for a lifetime of learning. Research proves that when children receive the right treatment and therapy they need before age five, they are more prepared to learn alongside their peers, build lifelong skills and achieve their dreams.

Staying Sane while Staying Home

By: Kelly Nesbitt, MOT, OTR/L, Occupational Therapist

Response to Coronavirus (COVID-19) 

Kids are finishing up the school year, you are still going to work/working remotely, running your home, and keeping your kids entertained during their summer! All this change can be very disorienting and stressful for everyone.  I wanted to put together a list of some suggestions that are “occupational therapist-approved” to help you navigate staying sane, keeping a good routine, carving out “family time”, and receiving therapy services remotely while being stuck inside the house! 

Routines

Probably the largest disruption to all of us at this time is that all of our daily routines are completely changed! Daily routines help provide structure to our lives, whether you are a child or an adult. Research by Ruth Segal, OTD and Assistant Professor in the Department of Occupational Therapy at New York University, reports that daily routines give families as sense of identity, organization, and provide socialization opportunities (Segal, 2004). Our kids are used to having a predictable day involving school, extra curriculars, play dates, and therapy appointments which help them organize their days and have meaningful interactions with family and friends. With this change to e-learning and staying home, it’s completely understandable that kids may feel stressed, anxious, and aimless without their routines. This stress may be more exacerbated for children with Autism Spectrum Disorder (ASD). Children with ASD can be heavily reliant upon predictability and routine, which have been thrown off because of the Coronavirus. For both neurotypical and children with ASD alike, using visual schedules, timers, and social stories may be good techniques to help your child cope with a new routine. 

Visual Schedules

Visual schedules can be as complex or simple as you need; they can be simple drawings on a piece of paper, an excel spreadsheet, or printed words/pictures from an online generator. For some of my clients, they are comforted and reassured when I draw 3 pictures of activities we are going to do in OT.

Honestly, whatever works for your kid and helps them feel organized is correct.  Whatever way you decide to create a visual schedule, it’s important to build in both structured and unstructured time for your children. They should have time built in for their academic work for school as well as a few hours for play time that is completely unstructured. Some kids may want to put a sticker next to an activity they completed, erase it on the whiteboard, cross it out, or just put a checkmark next to it. The sky’s the limit! Below are some examples of visual schedules and who it may be appropriate for:  

(Written schedule with times, appropriate for older elementary children who can tell time) 

(visual picture or words, as they are able to read. You can draw your own pictures or just print some off for younger children who cannot read.)  

More resources at: Free Templates for Daily Visual Schedules 

Timers

In conjunction with visual schedules, it can be helpful to utilize timers (sandtimers, timer on the microwave, on your iPhone, etc.) to help your children keep organized. The timer you use will have to be dependent upon your own child’s level of development as well as what they personally need to feel supported. Apps you can use: 

1. Children’s Countdown App: Great, free time app on smart phones that shows a picture countdown on the screen. The coundtown clock can be set for any amount of time and children do not need to understand how to tell time or have understanding of numbers to comprehend it.
2. Timed It! App: App for older children in which you can put in personalized tasks in minute increments and the app will help the child count down until they need to move on to the next task.
3. Timer on smart phone: just about all smart phones have a “clock” application in which there are capabilities for setting a timer. This would be good for older children who have a better sense of what an hour, minute, second is. Although, some younger children will understand the concept that they are only “all done” when the timer makes a sound.

Social Stories

For some children with ASD, social stories are a good way to help explain why their routine has changed or what the “story” of their day. Social stories are third person stories in which the child is the main character and different themes can be explored. Ask an Occupational or Speech therapists for help creating a social story, if needed. 

Here’s a link to example social stories and one of the final links on this page has a social story template: https://www.andnextcomesl.com/2018/07/free-social-stories-about-transitions.html.  

Reducing Stress Activities

 In this uncertain time, it’s important to have some outlets for both you and your children to decompress and still have fun together. Building in sensory activities into your daily routine will help your child remain calm and regulated throughout the day.  

Physical Activities and Heavy Work

Taking movement breaks throughout your day will help both you and your child stay sane while you are cooped up at the house.  Occupational therapists often discuss the benefits of heavy work and how this push, pull, or carry input (or proprioceptive input) to the muscles and joints has a regulating and calming affect. There are a multitude of heavy work activities you can do indoors. Such as:

1. Build a pillow fort with blankets, pillows & stuffed animals
2. Pull siblings on the hardwood floor while they are sitting or laying on a blanket
3. Do animal walk races across the room (bear walk, frog hop, crab walk, etc. Make up your own silly walk!)
4. Jumping Jacks or jump on a trampoline
5. Pull siblings in the wagon around the block
6. Have a wall push-up competition and find out who is the strongest in your house
7. Play towel tug-of-war
8. Plant flowers in the backyard or help with yard work (using little shovel, pull weeds, dig in the dirt)

My helpful tip to parents is, if the activity includes pushing, pulling, or carrying something; that’s heavy work! Get creative and come up with your own ideas!

Family Game Night/Nightly Mealtime Tradition

Keeping special family routines will be important to make sure kids feel safe and supported when everyone is kind of stressed. Set aside time in your routine where you can all sit down and have a meal together with the television off. A family tradition at my house growing up was to play “Pot Boils Over” where one member of the family starts a silly story and after a few sentences says “pot boils over” and “passes” the story-telling to another family member to add on as they please. It’s a simple game that gets all family members involved, laughing, and thinking creatively.

Another mealtime routine I have heard of, is going around and saying one thing each family member is thankful for, what the best part of their day was, share a good joke, etc. This is also a great time for families to all sit down together and have game nights. You are going to be all home together, why not build some special memories and encourage social learning. Here are a few favorite games that can be played with multiple people, for different ages:

1. Games for younger children: Shoots and Ladders, Simon Says, Twister (help them with right and left), Follow the Leader, Go fish, Memory (match pictures by turning over cards), Jenga, Kerplunk
2. Games for Older children: Twister, Uno (each color you play can correspond to a fun activity such as “Make up your Own Dance Move” or “Do 2 Pushups”), Clue, Scrabble and Scrabble Junior, Telestrations (like telephone, but with drawing pictures), Apples to Apples, do a 200+ piece puzzle as a family, Guess Who?

Here’s another resource with more games: Our Favorite Board Games for Kids

Unplug

I am personally feeling inundated by COVID-19 news and I can get overwhelmed quickly, so I can imagine you and your children are feeling the same. I think it’s healthy to be aware of the evolving situation and current precautions, however it’s beneficial to “unplug” every once and a while when you are at home with your kids. Your children are very perceptive and can pick up on your stress and anxiety as they read your non-verbal cues and affect. Young children especially need their parents to “co regulate,” meaning they read your affect, mood, facial expressions and adjust their own regulation accordingly. If you exude a calm, cool, collected attitude when they are anxious, this will help them calm down and feel secure.

Therefore it’s important to turn off the news at some point and focus on having quality and uninterrupted play time with your kids. Do finger painting, make a fort out of blankets, play board games, read stories by flashlight, sit together and do a puzzle or color! Even just being available to your children, not distracted by technology or work, can be extremely beneficial to your kids.

As May is Mental Health Awareness Month, the CDC also recommends to take time to pause and breath during stress. Notice How you Feel. Take Breaks. Make time to sleep and exercise. Reach out and stay connected. Seek help if you are feeling overwhelmed or feeling unsafe. If you or your child needs help, our social work team can help.

Tele-Therapy Services

COVID-19 does not have to stop your child’s progress toward their goals! Your child can still receive therapy services remotely via tele-therapy.  Tele-therapy is a unique service delivery method in which your friendly Easterseals therapist will arrange a time and will send you a link via the Microsoft Teams app. From there, you just click on the link at your pre-arranged appointment time and you can have a video call with your therapist. Your therapist can then work on therapy goals with your child with you, the parent, being the therapist’s “hands” in the session. An occupational therapist will help coach you through appropriate handling techniques, sensory strategies, exercises, fine motor activities, feeding session and more remotely!  

All our therapists adopted this technology so your child will continually receive services with minimal interruption. It is our hope to keep providing exceptional therapy services to all of our clients during this difficult time. If you have any questions or concerns regarding tele-therapy, please reach out to one of your therapists or contact us at 630.620.4433.

Also stay tuned to our blog for more resources and tips from our therapists on helping families cope with increased time at home during COVID especially during the summer.

Sources:

• Segal, R. (2004). Family routines and rituals: A context for occupational therapy interventions. American Journal of Occupational Therapy, 58, 499–508.
• And Next Comes L Website link: https://www.andnextcomesl.com/2018/07/free-social-stories-about-transitions.html
• The Many Little Joys Website link: https://www.themanylittlejoys.com/gift-guide-our-favorite-board-games-for-kids/
• A Day in Our Shoes website link: https://adayinourshoes.com/free-printable-visual-schedules-for-home-and-daily-routines/

Chores and Executive Functioning

By: Jessica Drake-Simmons, M.S. CCC-SLP

People are not leaving their houses right now and you know what that is resulting in?  A need for lots of cleaning and organizing!  This doesn’t have to be a solo effort though!  Maybe we can embrace this unique opportunity, where we are being asked to be our children’s teachers, to show our children some new things we don’t normally have time for in everyday life.

Research has found that one of the best predictors of a young adults’ success was whether one participated in household tasks when they were young.  Chores help kids have a “pitch-in” mindset, which is an invaluable skill throughout the lifetime.  In the book, 50 Tips to Help Students Succeed, Marydee Sklar describes the executive functioning skills that are developed when completing chores including:

• Time management
• Delaying gratification
• Planning
• Prioritizing
• Problem-solving
• Focus and goal-directed behavior

Here is an idea of some of the chores your child might be ready to do by age.  The level of assistance a child may need will vary.

Age 2-3: This is a magical age in which your child is so enthusiastic in their desire to  “help”! The problem is that “help” feels like anything but help!  However, it appears that cultures that embrace and expect children in this age group to participate in household work raise children that are willing and proud contributors to household chores.

• Put toys away
• Throw garbage away
• Put dishes in sink
• Help set the table
• Put dirty clothes in the hamper
• Dust the baseboards
• Fold rags, washcloths and dishcloths

Ages 4-5:

• Make the bed
• Feed the pets
• Pick up toys
• Water the plants
• Wipe cabinets
• Put away dishes they can reach
• Clear and clean table after dinner
• Make easy snacks
• Wipe down doorknobs
• Match socks

Ages 6-7

• Sweep the kitchen floor
• Empty the dishwasher
• Sweep the hallways
• Mop the kitchen floor
• Organize the mudroom storage area
• Make a simple salad

Ages 8-9

• Clean room
• Bring in the empty garbage cans
• Put groceries away
• Clean out the car
• Clean room
• Wipe bathroom sink and counters
• Sweep the porch
• Hang, fold and put away clean clothes
• Make scrambled eggs
• Bake cookies

Ages 10-11

• Clean the toilets (inside and outside)
• Wash your own laundry
• Vacuum
• Sweep the garage and driveway
• Wipe down the counters
• Clean the kitchen
• Make a simple meal

Ages 12+: For this age group, help them be proactive in recognizing what needs to be done and initiating a plan for how and when to do it.  Work side-by-side on house projects with them. 

• Clean the garage
• Mow the lawn
• Wash the car
• Mop the floors
• Wash windows
• Clean bathroom
• Help with simple home repairs
• Cook a complete meal

Tips for success:

• Teach the skills- Don’t expect them to learn it on their own.  Break down the task into small steps.
• Help them come up with organizational systems for their belongings that they can maintain with little help from you.  Have written labels or pictures to assist in sorting items in different boxes.
• Take a picture of what their clean room (or other designated) area looks like.  Encourage them to match the picture when their chore is complete.
• Give them some control, even if that means it’s not done the way you would prefer. 
• Assist them in thinking through when they will have time in their schedule to do their chores. 
• Help implement designated chores into daily routines. 
• Schedule work time and break time.
• Help them recognize how long a chore should take to complete in order to maintain their focus to the task and motivation for completing it in a timely manner. 
• Make it fun! 
  • Play music
  • Make it a race or competition
  • Create a chore chart or list which will assist experiencing a sense of accomplishment as they complete their chores
  • Sometimes incentives might help!
  • Have everyone completing chores together

Stay home, stay well, embrace the ones you are socially isolated with and relish in those chores! For more information on Easterseals DuPage & Fox Valley, visit eastersealsdfvr.org.

Heavy Work and Movement Activities for Sensory Regulation

By: Anna Bieschke Midwestern University Occupational Therapy Doctoral student and Linda Merry, OTR/L

Being stuck inside for this long of a time is certainly not fun, especially for little ones who are used to spending their day going to school, seeing their friends, playing at the park, or venturing out into the community with their families. When your child is cooped up indoors, they may not get as many opportunities to climb, jump, lift, pull, or move as much as they typically would. For many children, especially those with sensory processing difficulties, this heavy work and movement helps them to remain calm and alert throughout the day.

Your child’s ability to remain calm and focused during their daily activities is known as sensory regulation. This occurs when your child can respond appropriately to the information they take in from the environment through their senses (tasting, smelling, hearing, seeing, etc.). When a child is presented with too much or too little sensory input (like in the case of being stuck indoors with little exercise and movement), they may have a difficult time managing their emotions and behaviors.  This is called sensory dysregulation.

Some Signs Your Child is Dysregulated

• Becomes distressed when required to sit still
• Is easily distracted by objects or people in the environment
• Reacts defensively to certain textures, smells, sounds, or foods in their mouth
• Repeatedly and vigorously shakes their head, rocks back and forth, or jumps up and down
• Becomes frightened when they are in close contact with other children
• Runs away or becomes aggressive towards sensory input that makes them uncomfortable
• Hides or retreats to a quiet spot
• Appears extremely wild and/or engages in dangerous behavior

Why is Sensory Regulation so Important?

Helping your child stay regulated is important because it lays the foundation for the child to grow and develop new skills. As seen in the house diagram below, all the senses make up the base of the house. Without a stable base, your child’s coordination, language, attention, engagement in daily activities, and academic learning, among other skills, can be impacted. Just think how difficult it would be to sit and pay attention to an at-home school lesson if your distracted by the need to move around or are visually distracted by objects in the room.

Image Retrieved from: https://www.pinterest.com.mx/pin/75294624990224433/

Sensory Breaks with Heavy Work and Movement

One way to support your child’s sensory regulation while limited to being inside is to provide your child with sensory breaks, particularly with heavy work and movement. Heavy work is a form of proprioceptive input. Your proprioceptive sense lets you know where your body is in space and involves any activity that requires pushing, pulling, lifting, or squeezing. Proprioceptive and heavy work activities help ground the child and slow their bodies down to make them feel organized and calm. Movement activities can also be incorporated to help break up seated activities to support your child’s alertness and attention. Here are some fun ideas for heavy work and movement activities:

1. Indoor Obstacle Course
   • This activity is great because it allows you and your child to get creative. Use everyday items throughout your house to build an obstacle course that allows your child to jump on, climb over, crawl through and crash down. Pots and pans can serve as cones, pillows can be crash pads, and chairs can serve as tunnels or hurdles. Get your child more involved by having them help you choose objects and set it up. Remember, any lifting or pushing of objects can add an extra heavy work component to this activity.
     • Example of indoor obstacle course can be found here (https://www.youtube.com/watch?v=lCYBkNht_j8)

2. Build a Fort
   • Take whatever theme your child loves and run with it! Whether it’s a princess castle or a lion’s cage, have the child use their imagination to make a playful space. Help your child push furniture together, grab heavy blankets or pillows, and lift boxes or baskets to really provide them with that organizing and calming input. When the fort is made, it can also serve as a quiet and secluded place for your child to take a break if needed.
     • Example of a blanket fort can be found here (https://www.youtube.com/watch?v=ajcDcaNsFRY)

3. Catch Bubbles

• It’s pretty safe to say that many kids love bubbles. For this activity, blow bubbles towards the child and have them pop them by clapping both their hands together. Encourage the child to press their hands firmly together when clapping to increase the proprioceptive input to their joints. Blow the bubbles high to encourage your child to jump or low to encourage your child to squat down. Try to provide as many opportunities for different movements as possible.

4. Play a Movement Video
   • YouTube has many great movement videos for yoga, dancing, and animal walks that can engage your child in movement form the confines of your home. Clear some place in the living room and use your electronic devices to stream the videos. With this activity, it’s more about getting your child moving instead of making sure they are doing the movements perfectly.
     • Cosmic Kids Yoga (https://www.youtube.com/user/CosmicKidsYoga): This is a YouTube channel that provides yoga and mindfulness activities specifically designed for kids. This one is especially fun because many of the yoga themes follow along to your child’s favorite movies.
     • GoNoodle (https://www.youtube.com/user/GoNoodleGames): This is a YouTube channel that offers many “Get Moving” videos with silly dances for your child to follow along with.

5. Putty Play
   • Whether it’s play-doh, resistive putty, or thick cookie dough, have your child smash, pound, pull, and press the putty into various shapes. Use cookie cutters or other tools that encourage your child to press firmly down to make different shapes and cuts. To add an extra movement component, have them form the putty into balls and roll the putty to others at the table or toss it into a wide container. You can also hide small objects (beads, marbles, coins, etc.) into the putty for the child to pull out. All this pulling, pressing, and pounding will provide some heavy work to the arms and hands.
     • Here’s a video of how to make homemade play-doh! Have the children help you stir to add extra heavy work. (https://www.youtube.com/watch?v=oAIAm6BF0fs)

6. Push-O-War
   • This game follows the same concept of tug-o-war except now the children will be pushing objects instead of pulling. To play, place a piece of masking tape or painter’s tape in the middle between your child and another child to create the center line on the floor. Put an object in between the two children (could be a garbage can on its side, a large pillow, big ball, etc.) and have them both push the object at the same time to see who can push it over the center line first.

7. Wagon Rides
   • Have the child pull their smaller sibling or favorite toys in a makeshift wagon. Place a laundry basket or larger bin on a blanket and have the child fill the basket with their favorite toys (large stuffed animals, dolls, action fingers, etc.). The child can pull onto one side the blanket to slide the basket across the floor. A smaller sibling or friend can also sit in the basket to add some extra fun for all the kiddos in the house.

8. Involve the Child in Household Chores
   • What’s better than getting some household chores done while also providing your child with heavy work? Even though you’re cooped up inside, there is still work to be done. Have your child help carry and fill laundry baskets, bring the garbage down to the street, vacuum, sweep, or carry in bags from the grocery store. Cooking activities like stirring batter, tearing lettuce, and kneading dough can also be great options for heavy work and movement.

9. Other Movement Games
   • Other games including Simon Says, Ring Around the Rosie, Red Light Green Light, and Freeze Dance are also some games that can be played to promote movement when stuck at home. On nice days, take the child out onto the driveway or backyard to give them more space to run around and move.
     • Here’s a cute video for moving and freezing! (https://www.youtube.com/watch?v=388Q44ReOWE)

For more information about occupational therapy at Easterseals DuPage & Fox Valley, visit: https://www.easterseals.com/dfv/our-programs/medical-rehabilitation/occupational-therapy.html.

References:

Bazyk, S. (2020). Sensory and self-regulation strategies. Every Moment Counts. https://everymomentcounts.org/view.php?nav_id=204

Pfeiffer, B., Frolek Clark, G., & Arbesman, M. (2018). Effectiveness of cognitive and occupation-based interventions for children with challenges in sensory processing and integration: A systematic review. American Journal of Occupational Therapy, 72, 7201190020. https://doi.org/10.5014/ajot.2018.028233

Tele-therapy at Easterseals

By: Valerie Heneghan, M.A., CCC-SLP/L, Director of Speech-Language, Feeding, and Assistive Technology

Tele-therapy for All! 

Easterseals DuPage & Fox Valley has been at the forefront of serving children and their families in a way that meets their current needs through clinical expertise, a team-based approach and integrating technology to ensure maximum independence. As an organization, we have been offering tele-therapy opportunities for the past 10 years as a service delivery model to those it would serve optimally (i.e., a generalization of skills to home environment, transportation issues, medically fragile or at-risk health, to accommodate busy schedules, etc.). 

In response to COVID-19, all 87 therapists were trained to transition to tele-therapy services within two days with support from experienced tele-therapists within the agency.  

How Does Tele-Therapy Work? 

Once evaluated to determine eligibility for skilled therapy services, your therapist would follow up to plan your child’s tele-therapy session and schedule a time to meet. They will work with you to review treatment plans and establish your priorities. 

Laptops or desktop computers are preferred for best overall experience. But tablets, iPhones and Android phones can work too as long as the device has a working microphone and camera. A stable internet connection is needed via a hard-line/Ethernet cord, WiFi or using your cellular plan (your standard data rates may apply). Screen sharing is available to increase participation, engagement and utilization of resources throughout the session. 

Tips for Making the Most out of Online Therapy

1. Get comfortable with the technology: Immerse yourself in the platform you are using. There are often a lot of features available such as audio adjustments and visual displays, screen sharing, chat features, etc. The more comfortable you are with these features the easier it may be to modify or troubleshoot if a technical problem occurs.
   
2. Make a plan: Plan out a time and a designated space in your home that would work best for your child. Have the computer, phone or other device propped up on books or a stand that has a wide view of the room. If possible, the therapy time should be away from other family members or pets. Work with your therapist ahead of time to prepare a few materials or resources like balls, pillows, mats, or games. 
   • Ex: For a young child, find a space where the child can sit comfortably to view the screen but also has space nearby for movement breaks. Bring your child’s favorite toy to show to their therapist and board game to keep their engagement with the parent between exercises. 
3. Be flexible: When plan A doesn’t go accordingly, be willing to change course.  
   • Take the child’s lead and adapt as necessary. Let the therapist guide you in facilitating therapy strategies through real-life reactions and experiences. 
   • Use items in your home to replicate therapy equipment. Ex: Use couch cushions and pillows to create new surfaces for climbing and crashing. 
4. Make it fun: Be creative and try new things! You may be surprised by new interests and breaking from the same routines. See how much your child can do! 
   
5. Make it matter: Use this as an opportunity for your therapist to see your child in your home to incorporate therapy strategies and techniques in your daily routine. Let your therapist see what is important to your child and how to motivate them to achieve their treatment goals. 
   • Ex: A child is experiencing difficulty with mealtime; let the therapist observe seating and position at the table, mealtime structure, and how you communicate to your child during a typical mealtime. Pick a food that is important to your family and ask about strategies to incorporate it into your child’s diet. 
6. Give your therapist feedback: It may be more difficult to pick up on social cues, be direct about what went well and what could be improved. Share ideas and problem-solve together to plan for the next session.   

COVID Response

As we try to be one step ahead of the COVID-19 crisis and care of your child, we are committed to keeping our programs running. Our tele-therapy services are available to maintain your child’s therapy schedule, help your family navigate this new routine and manage the difficult emotions that may come with it.  We can also help parents that have a concern about their infant or toddler’s development now. There is no need to wait, as the early stages of a child’s life are the most important in their development.

We are pleased that tele-therapy has already helped many children eat a new food, stay active, and improve their regulation and play skills while building a stronger relationship with their caregiver. 

We understand the immense stress of balancing your child’s needs with the demands of work and school while also keeping your family healthy. We are here to ensure that each child and their caregivers have the support they need to adopt this technology and continue therapy progress. 

While much has changed, our commitment to you remains. If you have any needs, we are actively monitoring our main phone number, 630.620.4433 and info@eastersealsdfvr.org. Contact us at any time (please include your full name, child’s name, phone number and email) and a member of our team will return the response within one business day. 

Indoor Parks for the Winter

By: Kelly Nesbitt, MOT, OTR/L, Occupational Therapist

As the winter creeps up, my client families have been worried about their children not getting “their energy out.” It is a time when recess is moving from outdoors to indoors and fun trips to the park are being replaced with play at home. Not to mention with the sun setting after 4:30 PM, parents are a little weary of having kids play outside in the dark. 

So how do we make sure that our kids get the needed movement, play, and sensory input when the days are too short and invariably too cold to go outside? 

Besides indoor sensory activities that you can do at home (see previous post on Indoor Toddler Activities), here are a collection of indoor sensory parks in the Chicagoland area. These gyms have indoor swings, equipment, and sensory play that can help support your child in the winter months (or year round) when playing outside may not be possible.

These recommendations are based upon input from other therapists, clients, and online research. Sites have not been individually inspected on-site by the author.

We Rock the Spectrum

OT Overview

• What is it?: A “gym for all kids” that  “is committed to providing a safe, nurturing, and fun environment to foster learning, exploration and safe sensory experiences.” We Rock the Spectrum is owned by a speech pathologist whose mission is to provide a safe space for all children to play and explore. We Rock the Spectrum is a large gym facility that hosts both open play times, respite care, birthday parties, and classes. We Rock the Spectrum is specifically designed for children with special needs, especially those on the Autism Spectrum! Open for children in infancy to 13 years old. All children must be accompanied by an adult and wear socks. 
• Why an OT likes it: We Rock the Spectrum has a handy graphic of all their pieces of equipment and what sensory input they provide! 

General Information

• Where: 553 East Dundee Road Palatine, IL
• Hours: Open gym typically runs 10am-7pm during weekdays, but hours may vary, please check website for details. 
• Amenities: This gym has a lot of the same swings and equipment seen in therapy gyms- There is a zip line, swings, crash pit, weighted blankets, trampoline, tunnel, platform swing, hammock swing, monkey bars, and bolster swing. 
• Pricing: There are drop in prices as well as memberships. $14/child, $12/siblings for open play. You can get membership cards (5 visits for $60, 12 visits for $120, etc.) See website for full conditions and price listings. Unlimited monthly packages are available too.
• Contact: 
  • Website: https://www.werockthespectrumchicagopalatine.com/
  • Phone: 847-496-5674

ColorWheel Playhouse

OT Overview

• What is it?: Owned by parents of a child with Autism Spectrum Disorder, ColorWheel Playhouse aims to be “a place where kids with all ranges of abilities could come together and find joy and smiles on our Color Wheel of happiness.” ColorWheel playhouse is a facility that has a large gym, can host classes and birthday parties. Classes include a variety of topics such as bully prevention, CPR, karate demonstrations, fire safety, and much more. This facility is specifically designed for children with special needs! 
• Why an OT likes it: ColorWheel Playhouse has various different areas in which your child can choose what kind of input they are needing; there is an “Action Room,” designed to get your child the heavy work (push, pull, carry, climb, etc.) types of input to their muscles and joints that has a calming effect. There are various types of swings so your child can get the needed vestibular input (movement input from swinging back and forth, spinning, and jumping). Also there are arts and crafts/sensory bins available if your child needs a quiet moment to themselves. I also enjoy that the owners have a child with Autism, so the staff understands a child on the Spectrum and all potential needs and challenges. If birthday parties are challenging for a child, ColorWheel Playhouse offers themed birthday party packages at their facility. 

General Information

• Where: Sandpiper Plaza, 2000 Army Trail Road, Hanover Park, IL
• Hours: Open play hours: Tuesday through Saturday 10am-6pm, Closed Sunday and Monday.
• Amenities: This facility has a rock wall, ball pit, monkey bars, log swings, rope climbing wall, cacoon swing, trampoline, zip line, an arts and crafts table, and sensory bins.
• Pricing: Open gym: $10/child, $9/addition child. Punch cards and monthly memberships are available as well; See website for full conditions and price listings.
• Contact: 
  • Website: https://www.colorwheelplayhouse.com/
  • Phone: 847-284-9625

Ball Factory

OT Overview

• What is it?: Ball Factory is an indoor gym that has specified areas for babies, toddlers, and young kids to explore and play. Children up to 12 years old are permitted to play with their parents present. Ball Factory aims to make play comfortable for all ages, they have equipment and toys suited for babies to 12 year old kids, as well as comfortable seating for parents and senior discounts available for when grandma and grandpa want to visit! There is even a cafe inside where you can grab a bite. This facility is designed for all children, of all ages and abilities. 
• Why an OT likes it: I personally love the variety of equipment available at this facility- everything from ball bits, climbing structures, to push toys. I would recommend this facility for my clients that cannot get enough pretend play with cars and other vehicles, since there are kid-sized vehicles to drive around (and get vestibular and heavy work input as they pedal and push their cars around). I also love that this facility encourages family members not to just sit on the sidelines and watch their children play- but to get in on the action! Adults are allowed in all the play areas and there are comfortable seating options so that moms, dads, grandmas, and grandpas can play with their children, then rest and recharge. After all, a place with fun equipment is great, but made into an amazing experience for a child when their loved ones join in play with them. 

General Information

• Where: (there are 2 sites!)
  • Naperville: 864 S Route 59
  • Mount Prospect: 1042 S Elmhurst Road
• Hours: Sunday-Thursday 10am-7pm, Friday-Saturday 10am-9pm
• Amenities: Ball Factory has many fun areas for your child to explore that is age and abilities appropriate:The “Imagination Playground” has large soft blocks for children to play with, the “Tot Area” has padded equipment, cushioned toys, balls, and a small play structure with large, soft, Lego blocks. Based upon pictures from the website, there does not appear to be any indoor swings. However, there is a “Pedal Tractor Area” with pedal tractors with loaders, trailers, tractors, and fire trucks. There is also a pretend play gas station for all of the vehicles to refuel! Other pieces of equipment include a ball pit, maze, multi-story playground, ball blasting area (soft balls shot out of air-cannons), baby slides, interactive play floor, and super slides!
• Pricing:  
  • Children over 12 months (Monday-Friday) are $12.95, Weekends are $15.95. Children 6-12 months (Monday-Friday) are $10, weekends are $12. 
  • Children under 6 months are free. 
  • The Ball Factory also offers 5 visit passes that are $55. 
  • They also have fun discounts such as “PJ Play” in which children cost $8 for the last hour of the day and “Happy Hour Play”, in which children are $10 after 3pm  (Monday-Thursday).See website for full conditions and price listings.
• Contact:
  • Website: https://www.ballfactoryfun.com/
  • Phone: Naperville (630-640-2020), Mount Prospect (224) 244-9580 

Urban Air Trampoline and Adventure Park (Naperville)

OT Overview

• What is it?: This massive facility has all kinds of activities such as go-karts, “Wipe Out” styled obstacles, ropes course, etc. This facility offers Open Play hours where you can explore the building’s fun activities- such as an indoor trampoline park and climbing gym. There are so many activities available for open gym play as well as special events such as birthday parties. This facility is not specifically tailored to children with special needs, but may be suitable for these children with adult supervision and support. 
• Why an OT likes it: This facility would be perfect for some of my clients who love coming to OT to get intense crashing, pushing, pulling, and are “thrill seekers!” Some of my clients are obsessed with Wipeout and American Ninja Warrior- and Urban Air looks like a place where those “adrenaline junkies” could pretend they are competing in American Ninja Warrior themselves. 
• Special Note: Some activities at Urban Air may be a little more intense than the previously mentioned indoor playgrounds. I think this facility would best suit children who are more independent in their play and need just supervisory support to engage in novel gross motor activities. While these activities certainly do offer opportunities for heavy work and vestibular input (especially trampoline course, ropes course, zip line, climbing structures, rock walls, etc.), children with motor delays and/or are sensitive to intense movement input may have difficulty engaging in all of the activities offered. That being said, there are so many activities at this facility, that you are bound to find something for kids of all abilities to be able to participate in.  Please see the website for pictures to make your own assessment if these activities would be fun for your child. Consult your child’s Occupational Therapist if you are unsure if they would enjoy a certain activity. 

General Information

• Where: (3 Illinois Locations)
  • 1955 Glacier Park Avenue, Naperville, IL
  • 67 Ludwig Drive, Fairview Heights, IL
  • 19800 South La Grange Road, Mokena, IL
• Hours: (Varies by location, please see website for site specific hours)
  • Naperville Open Play hours:
    • Sunday-Wednesday (10am-8pm)
    • Thursday (No Open Play hours)
    • Friday and Saturday (10am-11pm)
• Amenities: Urban Air definitely offers the widest variety of obstacle courses (rope wall, Wipe Out course, tubes playground, dodgeball, warrior course, ropes course, strapped-in zip line), bumper cars, go-karts, trampolines, and much more!  There is a Kids Under 7 area with little-kid appropriate trampolines. 
• Pricing: Endless Play Memberships are available as well as birthday party prices. See website for full conditions and price listings.
• Contact
  • Website: https://www.urbanairtrampolinepark.com/locations/illinois/naperville 
  • Phone: (331) 472-8799

I hope these ideas will help jump-start your planning for outings for the winter months! If you have any questions or concerns about any of the aforementioned facilities, please contact the facility. Also, ask your child’s Occupational Therapist about what types of activities would be most beneficial.

For more information on occupational therapy at Easterseals DuPage & Fox Valley, visit http://www.easterseals.com/dfv/our-programs/medical-rehabilitation/occupational-therapy.html. 

Supporting Children with Sensory Disorders while Traveling

By: Kelly Nesbitt, MOT, OTR/L, Occupational Therapist

When a child with sensory processing disorder goes on vacation, it may be difficult for their bodies to go into that “relax and restore” mode. Children with sensory processing disorders are constantly “battling” with their environment in many of the following ways:

• Every sound is too loud and hurts their ears
• Smells are abrasive and can cause them to gag or vomit
• New tactile sensations send them into a panic
• Changes in their normal routine can make them extremely anxious
• New sights and movement in their environment can startle them

The following are some tips that may help support a child with sensory issues during a summer vacation so they may have a relaxing experience.

Visual Schedules

If your child benefits from knowing what to expect in the day, it may be useful to set up a visual schedule revolving around your vacation. This can include the steps you will need to complete going through the airport. (Travelers Aid Chicago has resources to make a visual schedule specific to O’Hare airport).

Some children may also just benefit from going over what to expect on their vacation. You can help them prepare by saying, “We are going to the airport and this is what to expect…”  or “We will be on vacation for 4 days. During those days we can do these activities…”

Long Car Rides

Children that are constantly on the move may find it extremely difficult to sit still during long car rides to their vacation destination. Often times kids who are always “on the go” benefit from heavy work activities that involve pushing, pulling, and carrying. These activities give input to the joints and muscles which can be very regulating. Here are a few heavy work ideas specifically for car rides: 

• Squigs on the windows: I suggest this for children who need something to keep their hands busy with push and pull component to get heavy work. These small plastic suction cups stick perfectly to car windows and to each other. Children can build and make a picture with them on the windows 
• Pop Tubes: These toys also provide an opportunity for children to push and pull when you are cooped up in the car.
• Animal walk breaks at rest stops: Just as you need to get out and stretch your legs during a long ride, your child with sensory difficulties will need this break too! At rest stops, take advantage of the opportunity to move by doing silly activities that promote heavy work: walking like a bear, jumping like a kangaroo, playing on a playground if the rest stop has one. 

What to Pack

Here’s a list of sensory supports that may help your child while you are on vacation. Make sure to consult your occupational therapist about which items may be most beneficial for your child.

• Noise cancelling headphones: Some children benefit from wearing headphones if they are easily overwhelmed by the loud noises of crowds. Noise canceling headphones can range anywhere from $20 to upwards of $200. These might be handy for kids that would get overwhelmed by crowds, traveling on an airplane, or seeing a firework show on the 4^th of July. 
• Comfort item: Bringing a stuffed animal or blanket that your child finds soothing may be beneficial for when they become anxious or overwhelmed while on vacation. You could even add soothing aromatherapy scents such as vanilla, lavender, or chamomile to these comfort items for an extra sensory “treat.” (Always make sure your child tolerates and likes the scent prior to adding it to their comfort item. If the smell is too bothersome to them, they may not want to be around it anymore!) 
• Weighted blanket or stuffed animal:  Some children with sensory processing difficulties find compression comforting. A weighted blanket or stuffed animal may provide some calming input and tell their body to relax. Weighted items are now available at most stores or online. Click here to read more about the benefits of weighted blankets.
• Fidgets:  These are small items that kids can fiddle with in their hands to keep them busy and focused when they may feel overwhelmed. Fidgets can be bracelets, putty, pop tubes, etc. 
• Identification bracelets: Sometimes when a child is overwhelmed, they may run away from the group. Because of this, it may be a good idea to make a bracelet with your phone number on it so that you can be reached in case of an emergency. Options include beads with numbers on them, temporary tattoos that you can specially order with your phone number on it. There are even cute “Disney-themed” buttons and tattoos with emergency contact information that you can specially order. Here are some examples of number bracelets and  temporary tattoos or you can design your own ID bracelet. 

The Benefit of Breaks

Children are working very hard to stay regulated and calm when they are being bombarded with all this new sensory input that comes with a vacation. They may just need a little break. It is absolutely okay to take some time in your hotel room or find a quiet spot for your child to regroup. Sometimes just a quiet room with a preferred toy or sensory tool is just the break that your child needs in order to enjoy the rest of their vacation.  

You can help your child create a “calm down corner” in your hotel room or wherever you are staying. This spot does not need to be complicated – it can be a little corner of the room with pillows, blankets, and some of the items previously listed in “What to Pack.”

This can be their special area in which they can retreat to take a break if they become overwhelmed and enjoy a moment away from whatever input is overwhelming them.

This is not a punitive space to send them to when they are behaving badly or being uncooperative. This is a calm space that you can offer them a break in or they can elect to go to when needed. Just as you may go sit by the pool after a busy day on vacation to relax and recharge, your child with sensory processing difficulties may need their own unique space to do the same.

Unexpected Meltdowns

Children with sensory processing difficulties can have meltdowns when they get too overwhelmed by the sensory input in their surroundings and/or if they become too fatigued. As well prepared as you may be, you can’t anticipate or prepare for every meltdown.

If your child has a meltdown while on vacation, first try to figure out what elicited the meltdown and remove them from the input that is too overwhelming for them. It may be helpful to go through all 5 senses: Was there a smell, sound, touch, sight, taste that they experienced that caused them to react? Were they in a loud, busy crowd for too long? Did the plan change too suddenly and without warning?  

Once you have removed them from whatever caused the meltdown (as best as you can), give them input to help calm them down. For some children, they like compression from big hugs or weighted blankets. Other children need to put on their noise cancelling headphones and have some quiet time. 

Sometimes children with sensory processing difficulties can meltdown because they are so tired from holding themselves together for so long in a new environment. As a clinician, I have an understanding of the experience, and know it must be exhausting to be bothered by what most people consider “normal” input, such as the sounds of people talking, the feel of your clothes on your body, or the smell of the pool on vacation.

It’s important for parents to understand that their child with a sensory processing disorder is expending a lot of energy processing input from their surroundings. They may need more patience and understanding when they are having a tough time with changes outside their normal routine. It may be helpful for parents to help children label when they are becoming agitated, by saying “It looks like you are not comfortable right now, can we take a break?”  

Summer vacation should be an opportunity for everyone in your family to rest and recharge. If you need help brainstorming what activities/preparations would be best for your child this summer, consult your occupational therapist for more insight into your child’s unique sensory needs.  

Read our previous blog on How to Plan a Sensory Friendly and Accessible Vacation

For more information about Easterseals DuPage & Fox Valley and our Occupational Therapy services, visit: https://www.easterseals.com/dfv/our-programs/medical-rehabilitation/occupational-therapy.html .

The Benefits of Weighted Blankets

By: Kelly Nesbitt, MOT, OTR/L, Occupational Therapist

Weighted blankets have become very popular in the past year, not only for children with sensory processing difficulties and Autism, but also with “neurotypical” adults. It’s hard to go online or browse the aisles of Walmart without seeing ads for weighted blankets touting an improved night’s sleep or improved mood. So what exactly is the hype around weighted blankets and why do they help children with Autism or other sensory processing issues?

What are weighted blankets?

Weighted blankets are usually big plush blankets filled with some sort of pellet to make it heavier (depending on what type of blanket you buy or make, they are usually filled with plastic, sand, steel shot beads, plastic poly pellets, micro-beads, etc.)

They can range in weight from a couple pounds to about 20 pounds and can be made out of just about any type of fabric imaginable!  Weighted blankets can be worn on the lap to help a fidgety child calm down in order to sit at the table for a meal with family, help ease anxiety during a car ride, or help lull a child to sleep.

Weighted blankets for children should not exceed 10% of their body weight for safety (weighted blankets should be a comfortable compression, not so heavy that they cannot be easily taken off by a child). These blankets are used for calming input to help a child “slow their body down,” not to be so heavy as to inhibit movement.

What’s the theory behind weighted blankets?

Weighted blankets can have a calming effect when worn over the body for the same reason that your child would seek a big hug when they are upset. This weight provides deep tactile input to the skin, joints, and muscles that tells your child’s brain to relax.

According to the American Sleep Association, deep tactile input provided from weighted blankets tells our central nervous system to switch from our “fight or flight” sympathetic state of being anxious and panicky to our “rest and recharge” parasympathetic state where our heart rates slow and we are able to calm ourselves down. Deep tactile input causes the body to release serotonin in the brain, a feel-good neurotransmitter that creates a sense of calm and well-being.

For children with Autism Spectrum Disorders or sensory processing difficulties, it is really hard to get their bodies to move from this “fight or flight” to “rest and recharge” state on their own. Occupational Therapists are trained in identifying strategies to help the central nervous system to calm through the use of movement, tactile, olfactory, visual, auditory, and proprioceptive input. Weighted blankets can be an effective modality to help accomplish this.

Store Bought vs. Homemade

There are a plethora of store-bought options for weighted blankets that range from relatively cheap to extremely pricey. Whether you purchase or make your weighted blanket should be based upon how much time you have available as well how much you want to spend. Both store bought or homemade options can have the same calming effect.

Regardless, like any other blanket, it should be washed occasionally. Make sure that the materials you purchase are conducive to being either machine or hand washed without destroying the blanket. For example, your blanket is filled with sand or rice, it would be a good idea to purchase a cover to go over the blanket so that it may be removed and washed.

Where to Shop

There are so many options for weighted blankets online and in store. Here’s a list of a couple choices that I have suggested to families in the past (ask your Occupational Therapist which companies they prefer and have had good experiences with).

• Amazon: Amazon has a large selection of blankets that range from $50-$100. Be sure to check individual seller’s policies on returns and weight specifications.
• Fun and Function: This therapy product website has weighted comforters, blankets, sleeping bags, and lap pads with fun designs and textures that are kid-friendly.
• Support groups: Parent support groups on Facebook often either personally know someone who makes great blankets or knows what companies make the best ones for a fair price. (For clients at Easterseals DuPage & Fox Valley, ask your Occupational Therapist about weighted blankets created by Easterseals families that are low to no cost!)

How to Make Homemade Weighted Blankets

Because I am always a fan of saving a few bucks and getting a little crafty, I usually tell my client’s families to try making a weighted blanket on their own. If a family is up for it, I recommend buying a duvet cover and going to a craft store such as Joann Fabrics or Michaels to purchase filler material. The duvet can then be sown shut and you can place another cover on top of the filled duvet so that the outer layer can be easily washed.

Making your own also lends itself to making a blanket that would exactly fit your child’s interests. You can purchase durable, washable fabrics with your child’s favorite characters on it. There are also online instructions for how to make your own blanket, like this one from Quality Plastic Pellets. Make sure to remember the rule for the weight of the blanket… make sure it weighs at most 10% of the child’s body weight.

Aromatherapy and Weighted Blankets

For an extra calming sensory experience, you can even add aromatherapy scents to your weighted blanket. Of course, make sure that the child enjoys the scent and is not bothered by this olfactory input prior to adding it to the blanket. Scents such as lavender, vanilla, chamomile, and bergamot can have a calming effect and can help with inducing sleep. Aromatherapy oils can be purchased at your local drug store. Click here to read more about adding aromatherapy to weighted blankets.

Whether you want to buy or make your own, weighted materials can be trialed in therapy sessions to see if the child has a positive, calming response with its use. Your Occupational Therapist will collaborate with you to consider what textures your child can tolerate in fabrics, if the sound of the material inside the blanket could be irritating, and when it would be most beneficial for the child to use the blanket.

Choosing a weighted blanket can be both an art and a science; if you are interested in trialing a weighted blanket for your child, feel free to ask your child’s Occupational Therapist about it!

For more information about Occupational Therapy services at Easter Seals, visit: http://www.easterseals.com/dfv/our-programs/medical-rehabilitation/occupational-therapy.html

Commonly Asked Questions About Down Syndrome

By: Kelly Nesbitt, MOT, OTR/L, Occupational Therapist

Down Syndrome, or Trisomy 21, is one of the more common genetic disorders in which children are born with 3 (instead of the normal 2) copies of chromosome 21.

There are common physical characteristics of children with Down Syndrome, such as upwardly slanted eyes, short fingers, small facial features, and a flattened nasal bridge. Children with Down Syndrome also may have varying degrees of intellectual disability, may develop heart conditions, and are at risk for visual impairments. Many children with Down’s Syndrome also have low tone (meaning that their muscles have less of a “taut” quality to them, making their joints appear “loose” or “floppy”).

Because of these physical and intellectual challenges that children with Down Syndrome live with, many children with Down Syndrome receive Occupational, Physical, and Speech therapies in order to address these concerns and make them as independent as possible.

That was the very medical analysis of Down Syndrome… but if you are a parent of a child who was recently diagnosed with Down Syndrome, you are not thinking of statistics, factoids, and medical jargon. You would be thinking, “What does this mean for my child?”

While I am not a parent of a child with Down Syndrome, nor do I pretend to be the holder of all the knowledge on Down Syndrome, I’ll try to answer common questions from my perspective as a Pediatric Occupational Therapist and a person who is proud to have friends with the condition.  

What services to I need to look into for my child?

Young children with a new diagnosis of Down Syndrome (under 3 years old) can qualify through Early Intervention Services through the state of Illinois. Early Intervention brings trained specialists into the home of eligible children with disabilities or delays and provides high-quality therapeutic intervention.

To start services, a parent schedules an evaluation through a Child and Family Connections provider closest to their home (featured in the link above). After the evaluator determines a child qualifies with a 30 percent delay in development in any area, or are at risk of developmental delays, he/she will set up An Individualized Family Service Plan (IFSP). The IFSP lists child and family strengths, needs, resources, priorities, and concerns. It also identifies services to be provided to your child.  

Many Easterseals therapists are trained and credentialed by the State of Illinois Early Intervention System. Parents can request an Easterseals therapist when qualifying for services and speaking with the EI Case Manager. 

Team members could include Developmental therapists, Occupational therapists, Physical therapists, Speech therapists, Audiologists, Social Workers, Nursing, Assistive Technology, and nutritionists, just to name a few.  These therapists can help your child with global strength, communicating effectively, sensory processing issues, fine and gross motor skills, and getting around in the community.

Once a child “ages out” of Early Intervention at 3 years old, many children with Down Syndrome continue to get services as needed through schools and outpatient based clinics, such as your local Easterseals.

Why would my child with Down Syndrome need Occupational, Physical, and/or Speech therapy?

I have worked with children with Down Syndrome as an Occupational Therapist for a number of reasons and most often to address the following:

• sensory processing difficulties
• trouble with transitions
• behavior management
• feeding difficulties
• handwriting
• dressing
• manipulating fasteners
• bathing
• social skills
• global strength
• participating in family and school routines
• access to community activities
• navigating their physical environment safely

I will refer children with Down Syndrome to Physical Therapy and Speech Therapy as well. Physical Therapists can help children with Down Syndrome ambulate and have sufficient strength to be able to crawl, squat down, skip, climb stairs, propel their walkers/wheelchairs or walk.

Speech Therapists can help a child with Down Syndrome improve articulation (intelligibility of spoken language), oral motor skills for feeding and speaking, pragmatic language skills, improving receptive language skills, and accessing augmentative forms of communication (picture boards or high-tech communication devices).

Will my child be able to go to school?

Yes! Whether it’s through an Individualized Education Plan (IEP) or a 504 plan, there are federal and state laws set in place that require schools to make education accessible to children with disabilities.  These plans set specific goals and help place children in the best environment at school to support their specific needs. Just because your child has Down Syndrome does not mean that they cannot have the same educational opportunities as their peers for K-12.

Can my child go to college?

College can be in the cards for your child. Click here for a list of some Illinois universities/colleges that have programs for adults with disabilities. 

Do children with Down Syndrome have friends?

Certainly! Children with Down Syndrome are sweet, funny, kind, and loyal friends. There are organizations that help give kids with Down Syndrome more exposure to similar-aged peers in the context of fun outings and school events.

I am proud supporter of Best Buddies International, whose mission is “to end social, physical, and economic isolation of the 200 million people with intellectual and developmental disabilities.” Best Buddies programs at elementary, middle and high schools pair students with intellectual or developmental disabilities with a similar aged peer and facilitate friendships between them!

My involvement in Best Buddies was one of the most positive experiences of my life and helped inspire me to become an Occupational Therapist. I am still friends with my high school buddies and we regularly keep in contact, even a decade later! Want to learn more? Visit https://www.bestbuddies.org

Do people with Down Syndrome date and get married?

Absolutely! I know people with Down Syndrome who are in long-term, committed relationships. There are even dating apps to help people with disabilities find that special someone.  Like all relationships, it’s important for people to set boundaries, expectations, and have mutual love and respect for one another, so why can’t people with Down Syndrome experience dating and marriage?

Can someone with Down Syndrome have a job and live alone?

Yes! There are job-training classes available through local community colleges and different companies that can lead to employment for people with Down Syndrome.

As for a living situation, people with Down Syndrome have a variety of options depending on their independence levels.

Options include:

• living at home with family
• living at a partially-independent living facilities
• living in “shared living” arrangements in which adults with Down Syndrome can share an apartment with a roommate
• living independently 

Additional housing resources are available through the National Down Syndrome Society.

Will my child have anyone like them to look up to in the media?

Of late, there are more actors with Down Syndrome in the media being celebrated! Some examples include:

• • Lauren Potter from “Glee” – Lauren Potter has amazing videos/PSAs and works a lot

    

    Lauren Potter in her role as Becky on Glee.

    on advocating for people with Down Syndrome – I highly recommend following her on social media

• • Jamie Brewer from “American Horror Story”

• • Sarah Gordy from “Call the Midwife” and “Upstairs, Downstairs”

• • Madeline Stuart – New York Fashion Week model

• • Luke Zimmerman from “The Secret Life of the American Teenager”

• Born This Way – Reality show on A&E that follows the lives of young adults with Down Syndrome through their experiences in their careers, friendships, family, dating, and marriage.

What organizations are there out there to support my child?

There are a wealth of organizations in the Chicago area that are designed to help children with Down Syndrome, both medically and socially. Here are just a few!

• • National Association for Down Syndrome

• • Global Down Syndrome Foundation

• • Easterseals

• • Central Illinois Down Syndrome Organization

• • Celebrate Differences

How can I show my support for children with Down Syndrome?

In addition to getting involved with the organizations mentioned above, the simplest way to show your support is to wear mismatched socks on World Down Syndrome Day which is March 21, 2019! 

The goal of World Down Syndrome day is to raise public awareness and create a single global voice for advocating for the rights, inclusion and well being of people with Down syndrome

While it’s impossible to depict the complexities and life experiences of people with Down Syndrome as someone without the condition, I hope I gave a brief peek into what a child with Down Syndrome’s future could look like. The road ahead may seem daunting once a child receives the initial diagnosis, but parents should take comfort in knowing that there are many resources available to help during every step. The parents I work with have told me of both the amazing successes and the difficult days their child has experienced. 

When it comes down to it, a child with Down Syndrome is still a child who wants the same things in life as anyone else: to be loved and accepted. So let’s show our love and acceptance of people with Down Syndrome by wearing mismatched socks on March 21!

I think that actress Lauren Potter puts it best, “Someone once told me that different isn’t bad – different is just different!”

For more information on the services Easterseals provides for children with Down Syndrome, visit: http://www.easterseals.com/dfv/our-programs/downsyndrome.html